Support groups were created to help people understand, communicate, and share stories with others who are facing similar challenges. Cerebral palsy (CP) is one of the most prevalent disorders in the United States, and many parents feel overwhelmed with the care involved with a baby who has CP. A CP support group can help parents, siblings, and other loved ones air out their concerns, fears, and find like-minded people who are experiencing the same dilemmas.
Why Do Support Groups Help?
Support groups help first because you see that you’re not alone. Around 1 in every 20 children born in the United States is born with CP, which means that you are likely to meet a family similar to your own.
By meeting with a support group, you can see that your experiences are empathized by others and see how other people manage making room for CP in their lives.. Most of the time, support groups are available to talk about the road they’re all towing –from all angles.
If you join a support group for parents of children with CP, chances are that you will meet a group of parents that are further along in the walk than you are. They can prepare you for different steps in the journey, including legal battles, recommended doctors and therapists, milestones in therapy, recommended health care workers for inside your home if you need it, and recommendations for resources for all of your child’s needs, from adaptive equipment to educational resources and many more.
Where Do I Find a Support Group?
You can often find a support group at your nearest hospital or community center. Additionally, when your child is diagnosed with CP, a support team of experts are generally available to help you determine a Life Care Plan for your child to ensure that financial needs are met.
Often times, when you draft the Life Care Plan you are put into contact with someone who represents a support group for parents of children with cerebral palsy. You may also be connected with a support group for individuals with CP so that your child, too, has a support group for when and if he or she needs one.
Who Attends These Support Groups?
Along with parents, friends, and loved ones of children with CP, other members of these types of supports group are also comprised of medical professionals who want to give helpful advice and support, and sometimes members of the group are represented by people in the community who want children with disabilities. You can find answers from a support group, but you can also find help from people who just want to be there to help you and your child through this process.